Dementia Care Collaborative Logo
Home / Resources

Resources

Navigating the journey of dementia can be complex and overwhelming for your loved one, for you, and for your entire community. Fortunately, there are many avenues for support education, and connection. Below are a few organizations and programs you may find helpful.

Please see the resources available below.

Best Practice Caregiving Resource: Two New Dementia Care Programs Added
Best Practice Caregiving (bpc.caregiver.org) has added two dementia care evidence-based programs to their resource database of proven dementia programs for family caregivers. The newly-added programs are Caregiver: Thrive, Learn and Connect (Caregiver TLC) and Tele-Savvy.
National Council on Aging
The National Council on Aging's mission is to improve the lives of millions of older adults, especially those who are struggling. You can learn more about them on their website!
National Council on Aging Resource Guide
NCOA’s Resources and Support for Older Adults Living Alone: A Comprehensive Guide includes a wide variety of practical tips and local resource recommendations from geriatric health experts and advocates, such as:
The top five Alzheimers.gov articles of 2023
Find more ways you can care for yourself as a caregiver at Alzheimer's.org
Affordable Health Insurance Resource
Oral Care Tips for Dementia Caregivers
Aging Life Care Association
Access private, licensed care managers anywhere.
The Aging UnLonely Initiative
The Aging UnLonely is an initiative of the Art and Healing Foundation that empowers partners with programs that use the arts as an accessible and effective public health tool for older adults to create meaningful connections and improve health and well-being.
Alzheimer’s Association
Formed in 1980, the Alzheimer’s Association is the leading voluntary health organization in Alzheimer’s care, support and research.

24/7 Helpline 800-272-3900
The Alzheimer's Store
The Alzheimer’s Store is a unique source for comfort and safety products designed specifically for those with Alzheimer’s, dementia, stroke and other memory related conditions.
Area Agencies on Aging
This is a Federal Program, administered by individual states that provides resources for older adult and people with disabilities live with dignity and choice.
Being Patient Voices
"Being Patient Voices" is a series of essays from people directly impacted by Alzheimer’s — those with a diagnosis and the loved ones who take care of them. Being Patient is a leading online community for Alzheimer's & dementia patients & caregivers. They offer a free weekly e-newsletter with news, guidance from experts, scientific breakthroughs and stories of hope.
American Association for Frontotemporal Degeneration
AFTD’s mission is to improve the quality of life of people affected by FTD and drive research to a cure.

1-866-507-7222
Dementia Friendly America
Dementia Friendly America is a national network of communities, organizations, and individuals seeking to ensure that communities across the U.S. are equipped to support people living with dementia and their caregivers.
Dementia Friendly Massachusetts
Become a “Dementia Friend” through a one-hour information session that will offer five key messages about dementia. Join this global movement that is changing the way people think, act, and talk about dementia.
Employer Benefits and Employee Assistance Programs
If you or a family member are employed, consider reaching out to your human resources representative to learn if you have an Employee Assistance Program. EAPs often offer free short-term counseling and programs on a variety of topics including a broad range of issues such as elder care, financial or legal issues, and wellness matters.
Family Caregiver Alliance
FCA provides services to family caregivers of adults with physical and cognitive impairments. Services include assessment, care planning, direct care skills, wellness programs, respite services, and legal/financial consultation vouchers.

800.445.8106
The Frontotemporal Disorders (FTD) Unit at Massachusetts General Hospital
This unit provides diagnosis and treatment for FTD and related disorders, as well as young-onset and atypical forms of Alzheimer's disease. The unit aims to increase knowledge through an active research program and provides comprehensive clinical services.
Massachusetts Assisted Living Association
Mass-ALA is a non-profit association that educates members and the general public about the philosophy of assisted living through a free, comprehensive, Statewide Guide to Assisted Living in Massachusetts. Mass-ALA has tools and resources that can help you search including a glossary of terms and a list of helpful links.
Massachusetts 1-800-AGE-INFO
MassOptions connects elders, individuals with disabilities and their caregivers with agencies and organizations that can best meet their needs.
Massachusetts Senior Care Association
Massachusetts Senior Care Association is the state’s leading senior care organization representing nursing facilities, assisted living residences and continuing care retirement communities. This site helps you make the best choices for you and your loved one by providing helpful links for care options, finding a facility, how to choose a facility, and more.
Memory Cafés
A memory café is a welcoming, social gathering for people with dementia and their care partners. Their common threads are a focus on the enduring personhood of those with dementia rather than on the disease and a chance for those with dementia and their care partners to enjoy socializing without worry of stigma or judgment.
National Association of Elder Law Attorneys
Dedicated to improving the quality of legal services provided to older adults and people with disabilities.
Silver Kite
SilverKite offers arts programs for older adults, dementia friendly arts programs, and intergenerational arts experience. During COVID-19 they are offering online intergenerational arts workshops, talks, social hours, and performances for the community to provide stimulating creative engagement opportunities and social connection. Some programs charge a nominal fee.
Caring.com
Caring.com is a leading senior care resource for family caregivers seeking information and support as they care for aging parents, spouses and other loved ones.
Go to top of page